I'm going to be taking a bit of a break from blogging. Tuesday night my husband gave me my Copaxone injection and leave it to me I had a (what they call normal) side effect. I have had these in the past. The tightening in the chest, hard to breath etc. But this one took a new turn. After about 20 minutes of "normal side effect" I went into having severe chills. That lasted about an hour. I finally fell asleep and woke up to my body itching and feeling a burning sensation. I started to rub my eyes and they felt funny so I went into the bathroom to see my adorable face swollen from ear to ear. Actually even my ears were swollen. I was covered from head to torso with hives. So I sat for about half an hour deciding on what to do. I woke my husband for round three of the reaction and we decided to call the doc. He wanted me immediately in the ER. He said if it starts getting worse it could go to my throat, which it did. So off to the ER at 1:00am. I got two nice big shots in the butt and went home. I am feeling much better but can honestly say I am mentally worn out with this disease. I see my doc tomorrow to decide what we do next. I think I hit a new level of fear. One thing that has me curious is that the only time I have had a mild reaction is when the shot is in my stomach. And on top of this my son has the teacher from hell and she decided to mess with him yesterday morning after he had to witness this ordeal with his momma. Not to mention I spoke with her in the morning to let her know what happened and that he would be running a bit late for school. So into the principal I went this morning. Oh, did I tell ya I am dealing with roid rage right now too. Not a good time to mess with my kid. So I need a little break to figure some things out but will be checking in to see how my fellow bloggers are doing. You all take care, I know some of you are dealing with your own stuff right now.
When I do post again I will tell you about the most amazing husband who was by my side the entire time without one complaint and full of support. I am sooooooo blessed.
Thursday, May 29, 2008
Wednesday, May 21, 2008
LISTEN
LISTEN TO YOUR HEART
The mind determines what's possible. The heart surpasses it.
-Pilar Coolinta
The mind determines what's possible. The heart surpasses it.
-Pilar Coolinta
Tuesday, May 13, 2008
When Does it Stop!
School usually ends at 3:30 for my son Mitchell. Today at around 2:45 my phone rings and when I look at the caller id it is showing my sons cell phone number. My stomach just sank. I pick up the phone to hear Mitchell's voice saying that he is at the elementary school behind his school because there was a note written on the boys bathroom saying there was a bomb in the school. Of course I don't get all the facts since the school is in the middle of trying to keep our children safe and find out if this threat is real. What I just can't wrap my brain around right now is that this is the third threat in a week in our school district. Last Wednesday it was the high school. They caught that kid by the next day. Yesterday it was the other middle school on the other side of town ad today it is my sons school. What is in these kids minds that they find this something amusing to do. Our kids were sent home with a note saying that the police were there today searching and they would keep us updated on what is going on. So tonight I have a talk with my son about this entire situation and after it is over he just looks at me with his big blue eyes and asks if he has to go to school tomorrow. As of right now I am not sending my son to school because I haven't heard anything yet from the school. I have all these questions rolling around in my head. Am I ever going to feel that sending my son to school will be a safe place for him. How do i as a parent ever really keep him safe. This whole situation just has made me sick to my stomach.
Monday, May 12, 2008
Mothers Day
So I'm a day late but my Mothers Day was spent mostly on the couch because of a reaction from my MS injection. I was woken early Sunday morning to find my son had made me my Mothers Day breakfast. I look forward to this every year. My son was a bit disappointed because he usually make me crepes but couldn't get everything he needed. It was all OK. The best part is the clean up. I don't have to do it. That is where the hubby comes in to play. Poor guy. If you could see what the kitchen looks like after Mitchell gets done cooking. EEK! My gift was a new necklace to go along with the charm he bought me for Christmas. I'll have to get a picture of that. It is a snowflake. If you have read my blog I don't need to say anymore about that or its meaning. The picture is of my sweet little boy asleep after his busy Mothers Day. I love those pics of the little ones sleeping. So peaceful and innocent. Well onto the next major event for our family. Mitchell's 13th birthday. Let the planning begin!
Sunday, May 4, 2008
HAPPY ANNIVERSARY

It has been seven years today since I married the most amazing man. We had a simple ceremony in my girlfriends backyard. But it was the most beautiful day ever. He came into my life when I thought I would never want to be married. He became this awesome father to my son and took on a wife who had such an unpredictable disease. How many men would do that? We have had our ups & downs but we get through them together. I can't ask for a better role model for my son. There is a bundle of emotions when living with this man and you never know which one is going to be coming out. He handles many situations with his smile and humor. He tries to not let things get him down. I haven't met a person that doesn't like him or get along with him. He is patient, kind and at times oh so frustrating. He keeps me balanced when I need it. I guess to put it in the most simple of words is that we compliment each other. We keep each other grounded. So happy anniversary to the man that is meant for me. It has been an eventful seven years and I can't wait to see what the upcoming years have for us to share.
Thursday, May 1, 2008
Busy Time
This time of the year gets a bit crazy. It seems like the teachers forgot to teach some things throughout the year so they are cramming everything in the last 6 weeks of school. Plus everyone is crabby because they just want school to be over. The weather has been nuts so at least it hasn't been to warm in the schools yet. Earlier this week we even had some snow showers again. But today we hit 70. So my MS is going a bit nutso with this extreme weather change. So the results are in on my son and he has been diagnosed with hypoglycemia. At least it isn't something so bad we can't deal with it. It has been a bit of a challenge to get some teachers, or should I say two in particular, on board with knowing what Mitchell needs and when he needs it. I give a big shout out to teachers. It isn't the easiest job in the world but if you take on this profession then you need to have some compassion and Oh let's say common sense! If I email you letting you know exactly what is going on plus the school nurse has notified you then how much more info does one need. I have had two teachers at three different times just in the past five days refuse to let my son have his snack in school. I called the school again this afternoon asking what I need to do to get the teachers to understand this is important. I emailed the one teacher politely reminding her about his need for the snack. Then yesterday she did it again and I sent another email asking if I need to come into her class and make sure my son is getting his snack. Because I would be more than happy to come in every day during her class period and make sure she is letting my son have his snack. I haven't heard back from her yet. This has been very upsetting for my son going through all the testing and now worrying if it will get worse. Why is it so hard for a teacher to have some compassion. Or am I being overboard because when my son tells a teacher he needs to have a snack because of a health issue she looks at him and says "I don't believe you". I'm just very disappointed that this whole matter hasn't been handled more smoothly.
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